Saturday, April 25, 2009

Dreams, dragons, fairys and ointments.

Bailey is home from the hospital. I would love to be able to say that he is all better but he isn't. He actually looks really terrible. Worse, in fact then when he first went in. He had an allergic reaction to the cream they were putting on him so he has a rash covering his entire body and looks like a burns victim. His actual psoriasis is looking much better and is responding really well to the light treatment. Now he has to go to the hospital for six weeks as out outpatient two times a week. They wanted three but there is no way we could fit that into our lives. It is an hours drive through major traffic each way. Plus it will mean that he misses out on school two days a week, as the appointments are all over the place. I can feel a little bit of homeschooling coming on. Woohoo!!!

The positive side is he has his health and it is looking like he will lose the psoriasis. He is a good boy and has put up with a lot. At the hospital they had the most amazing fairy garden, it was truly beautiful. It had all lights and trees with little windows and doors with lights behind them. And at night it was wonderfully magical. Bay and I loved it. We went out every night to have a look at it. It was SO cool.

They also had breath taking beautiful murals painted over all the walls. I often got distracted on a late night toilet run by the walls. Oohing and aahing and trying to work out how they were painted. I really wish I could do something like this in the girls room.

And the boys would go crazy for something like this


We are getting ready for a visit from the cousins so I had better chuff off for now.

2 comments:

Cheesemakin' Mamma said...

I'm so sorry to hear he's doing worse, not better. I pray it will clear up soon. The fairy garden is really cool!

Stacie, A Firefighter's Wife said...

That must be so discouraging. I know we have been through a gamet of medicines trying to keep Steve's under control. The infusion seems to be the best thing so far. It is ungodly how expensive it is. Almost $9000 per infusion every two months. Thank the Lord for insurance! Steve also has it from toe to head.